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Category: Autism & Apraxia

Stories, insights, and advocacy centered around nonspeaking autistic individuals and those navigating apraxia. This space is about truth-telling, empowerment, and pushing for communication access and real inclusion.

The Wellness Hustle

An editorial illustration showing RFK Jr. in a dramatic, theatrical pose at a podium marked “Health Freedom,” with collapsed government structures, falling paperwork, and supplement bottles symbolizing unregulated wellness products. In the background, disabled children, community clinics, and educational systems appear neglected. The image uses satirical exaggeration to critique how branding and profit have taken priority over genuine public health solutions.

How RFK Jr. Turned “Health Freedom” Into a Brand—and a Business “We don’t have a health care system—we have a sick care system.” —Robert F. Kennedy Jr. That line sounds good. Like something you might nod along to over coffee with a friend or colleague. Like a truth someone finally had the guts to say […]

Sabotage by Design: Seven Signals of Systemic Delay, Devaluation, and Denial

“It doesn’t take sirens to signal collapse. Sometimes it sounds like silence, looks like paperwork, and hides behind procedure.” This week’s dispatch begins with a revelation: the people claiming to dismantle “captured institutions” appear to be redirecting our trust—and our dollars—toward something just as compromised. From wellness profiteering to delayed grants, canceled medical panels, and the gutting of public education, these signals aren’t random. They’re systemic. This is sabotage by design. And those of us living at the margins—the disabled, non-speaking, neurodivergent, under-resourced, overburdened and underestimated—are being made to pay the price. 1. Wellness Over Watchdogs: How the “Health Freedom” Brand Pays Big A new CNN/KFF investigation reveals that RFK Jr. and several top HHS advisors earned over $3.2 million from wellness-related ventures in just two years. While publicly attacking Big Pharma, they’ve quietly built financial ties to supplement companies, alternative clinics, and deregulated health services. It’s not reform. It’s redirection—from one industry’s grip to another’s. The global wellness market thrives in regulatory vacuums—and this administration is methodically creating those vacuums. Expert panels are being silenced. Oversight is being gutted. And those profiting are the ones charged with protecting public health. This development underscores a profound conflict of interest. The Department of Health and Human Services is no longer merely a regulatory agency—it is now clearly a marketing arm for the unregulated wellness industry. Kennedy’s framing of “health freedom” may appeal to those disillusioned with pharmaceutical dominance, but in practice it erodes public trust and leaves the most vulnerable without protection or recourse. Note: A full standalone post on this topic—The Wellness Hustle—is coming later this week. Stay tuned. 2. Dismantled by Design: The End of Federal Education as We Know It The Supreme Court has greenlit mass layoffs and outsourcing within the U.S. Department of Education. Enforcement of IDEA is on track to be handed to HHS, and civil rights investigations may soon move to the DOJ. This isn’t decentralization. It’s deliberate abandonment. For disabled students, LGBTQ+ youth, and children of color, this means fewer protections, fewer investigations, and nowhere to turn when rights are violated. Laid-off DOE staff were handling thousands of open civil rights cases. With the department being gutted, those cases now risk being lost in transition—or buried altogether. Secretary Linda McMahon has said the department’s “final mission” is to hand control over to the states. But the IDEA and other civil rights statutes exist because states routinely failed to protect vulnerable students. Outsourcing to agencies like HHS or DOJ may sound functional on paper, but these departments are neither designed nor staffed to enforce education-specific mandates. The result will be a collapse in oversight just as need surges. 3. Underpaid, Overlooked: When Disability and Wage Policy Collide The Trump administration has reversed course on phasing out subminimum wages, preserving a program that allows disabled workers to be paid as little as $2.50/hour. Meanwhile, the federal minimum wage has been stuck at $7.25 since 2009—the longest freeze in U.S. history. When adjusted for inflation, it’s now worth less than $5.50. This is not a relic. It’s a system designed to exploit—and one that policymakers continue to protect. Many disabled workers fall into the legal gap created by Section 14(c) of the Fair Labor Standards Act. Though originally intended to provide opportunity, the program has become a mechanism for segregation and exploitation. In 2024 alone, more than 40,000 disabled individuals were paid less than minimum wage, often in sheltered workshops with no clear path to competitive employment. Advocates from across the political spectrum—including states like Tennessee and Illinois—have moved to phase out subminimum wage. But the federal decision to preserve it shows just how entrenched ableist labor policy remains. Disabled Americans are being treated not as workers deserving equal pay, but as a “special category” whose exploitation is framed as benevolence. 4. Preventive Care on Pause: Kennedy Cancels the Screeners RFK Jr. canceled the July meeting of the U.S. Preventive Services Task Force, whose recommendations determine which preventive services must be covered by insurers. He now has the authority to override their guidance or fire members entirely. When evidence-based care becomes political theater, lives are lost—not to illness alone, but to interference, delay, and confusion. The USPSTF has long operated as an independent panel of medical experts, issuing guidance that influences access to cancer screenings, HIV prevention, and cardiovascular care. By stalling its operations and gaining veto power, Kennedy can now filter which recommendations are allowed to proceed based not on science, but on ideological alignment. This interference in medical guidance is unprecedented. If left unchecked, it will erode the foundation of evidence-based policy. Groups like AcademyHealth have already warned that trust in the Task Force is being decimated—a loss that could have cascading effects on public access to care. 5. The Bottleneck Bureau: DOGE Delays Critical Health Funding The newly created and hypocritically named Department of Government Efficiency (DOGE) has slowed or blocked more than $1B in healthcare grants. Programs serving low-income patients, disabled individuals, and community clinics are facing payment delays and shortened application windows. This isn’t fiscal prudence. It’s administrative sabotage. Under DOGE’s “Defend the Spend” initiative, HHS must obtain clearance before releasing grant funds. This has introduced massive bottlenecks, with payment delays affecting everything from maternal health programs to staff salaries at community clinics. Some grants are now months behind schedule. Officials are now proposing two-week application windows to catch up—a move that will inevitably favor large, well-resourced applicants and further marginalize grassroots providers. Meanwhile, patients and practitioners are left in limbo, as needed funds sit idle behind bureaucratic walls. 6. Candy-Coated Hypocrisy: Mars Rejects RFK’s Call to Ditch Dyes Mars Inc. refused to remove synthetic dyes from Skittles and M&M’s—even though their European counterparts are already dye-free. The company invoked “consumer choice” and pointed fingers at alcohol and cigarettes. You can’t claim to protect children’s health while defending petroleum-based dyes in their lunchboxes. While RFK Jr.’s call for dye removal aligned with growing public health concern, Mars’ rejection reflects a broader theme: profit over precaution. Despite evidence linking certain dyes to behavioral challenges in children, Mars maintains its U.S. formulations, citing cost and consumer preference. This signal showcases it clearly: even when the administration attempts to act protectively, it does so in a vacuum of credibility. Because when the overall field is one of deregulation, mixed motives, and institutional erosion, even reasonable measures look like political theater. 7. Shakeup at the Top: RFK Jr. Fires His Inner Circle Just as Volume IV was preparing to close, the story cracked open once more: RFK Jr. abruptly fired both his chief of staff, Heather Flick, and his deputy chief of staff for policy, Hannah Anderson, following internal clashes and mismanaged personnel moves. Even the architects of the MAHA machine couldn’t survive its instability. According to CNN, Flick pushed to remove Anderson over dissatisfaction with her performance—but Kennedy fired Flick instead after the attempted ousting backfired and caught the White House off guard. The result? A leadership crisis at the top of HHS, just months into his tenure, with no permanent replacements named. Both Flick and Anderson were key players in Kennedy’s agenda: Flick brought deep Trump-era HHS experience, while Anderson shaped much of the MAHA health policy narrative through her ties to the America First Policy Institute. Their removals signal internal chaos, fragile strategy, and a deepening fracture inside what was already a destabilizing administration. What began as a war on oversight is now turning inward. And those who built the machine are being consumed by it. 🌍 Links & References CNN/KFF Report: https://www.cnn.com/2025/07/15/health/hhs-kennedy-pharma-wellness-kff-health-news AP Education Department Story: https://apnews.com/article/education-department-trump-scotus-linda-mcmahon-layoffs-04b582fc0d109e1840b22733fd985876 Disability Scoop on Subminimum Wage: https://www.disabilityscoop.com/2025/07/12/feds-ditch-plan-to-end-subminimum-wage/30955/ The Hill on USPSTF Cancellation: https://thehill.com/policy/healthcare/4740828-hhs-cancels-preventive-services-task-force-meeting-rfk-jr/ KFF Health News on DOGE Delays: https://kffhealthnews.org/news/article/hhs-grant-funding-doge-delays-defend-the-spend/ Benzinga on Mars & Dyes: https://www.benzinga.com/personal-finance/management/25/07/46381494/mm-skittles-maker-rejects-rfk-jr-s-call-to-drop-synthetic-dyes CNN on HHS Firings: https://www.cnn.com/2025/07/16/health/hhs-kennedy-shakeup-firings A bold, WPA-style political illustration showing a crumbling federal building labeled “U.S. Department of Oversight.” The structure is collapsing from within. Pillars made of rolled-up IEPs, HHS grant checks, and wage stubs labeled “$2.50/hour” are breaking. At the top, a glowing MAHA banner flutters. A figure in a red suit sits on a “wellness throne” made of supplement bottles and IV bags, holding a bottle labeled “Health Freedom.” Two aides are flung from opposite sides, papers flying. At the base, backpacks fall down broken stairs marked “IDEA,” a red Skittle rolls off the edge, and a kinked hose labeled “DOGE” drips onto a clinic below.

The Darker Side of the Spectrum – Volume IV “It doesn’t take sirens to signal collapse. Sometimes it sounds like silence, looks like paperwork, and hides behind procedure.” This week’s dispatch begins with a revelation: the people claiming to dismantle “captured institutions” appear to be redirecting our trust—and our dollars—toward something just as compromised. From […]

Head Starts Denied, Fresh Food Replaced, Silence Sustained

A satirical cartoon illustration of a food pyramid made of ultra-processed items like soda, chips, and supplements. At the top, a suited bureaucrat holds a wearable fitness tracker and waves a flag labeled “Food Freedom.” Below, disabled families are blocked by fences labeled “Medicaid Cuts” and “Program Delays.” A large billboard in the background reads, “We Can’t Afford Fresh Food—But We Can Afford to Monitor You.”

Field Dispatch: Volume III The Darker Side of the Spectrum | July 13, 2025 While the media churns over headlines, hearings, and campaign chaos, the real machinery of this administration grinds on. Each week, we trace the policies, silences, and actions that most impact disabled Americans, non-speaking autistics, and families living at the edge of […]

The Darker Side of the Spectrum

Illustration of a non-speaking autistic boy in a wheelchair holding a letterboard that reads “I HAVE SOMETHING TO SAY,” while a politician at a podium marked “HEALTH FOR ALL” speaks to an audience. A smartwatch and other tech devices are lit on one side; the boy is alone on the other.

Field Dispatch #002 – July 2025 The Silence That Hurts: RFK Jr., S2C, and the Cost of Inaction I’ve been asked more than once—“Don’t you know he’s on our side?” After writing about RFK Jr., I’ve had parents of autistic kids reach out with some version of: “Don’t you know he’s actually on our side?” […]

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