Is the Autism Industrial Complex Real?

When most people think of autism, they think of a diagnosis that leads to help, support, and answers. But what if I told you the system built around that diagnosis is more about billing hours than building lives? What if I told you the real reason autism has become so broad, so vague, and so […]

Denied and Dehumanized: When the System Says My Son Isn’t Disabled Enough

A composite image showing a government Social Security Disability Insurance document stamped “DENIED” in bold red. Below it, a letterboard with alphabet letters represents alternative communication, a medical ID bracelet labeled “EPILEPSY,” and a faint silhouette of a child holding hands with an adult. The overlayed quote reads: “He has seizures. He can’t speak. But they say he can work.”

My non-speaking autistic son Stone was denied disability benefits through SSI. Yes, you read that right. We filed the application in April 2023. In the months that followed, they requested evaluations – a psychological review, a medical evaluation. We complied with everything. We even visited the local SSI office in person, where we were told […]

What Autism Progress Really Looks Like: A Twelve-Year Journey from Bittersweet to Hope

Stone, age 7, standing at the threshold of an ice rink in rental skates, looking out with curiosity and hesitation.

Twelve years ago today, I wrote a blog post titled “Bittersweet and Autism”—a reflection on parenting twin boys, one neurotypical, one on the autism spectrum, and the small victories and silent aches that come with the territory. Today, I’m sharing that post again—and reflecting on how far we’ve come. Twelve Years After Bittersweet Twelve years ago, […]